homocystinuria, pyridoxine non-responsive
Metabolic · 2015–2023
No submission for this condition has carried consumer input, including the 4 made since the comments facility came into use.
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| amino acid formula with vitamins and minerals without methionine and supplemented with arachidonic acid and docosahexaenoic acid Dietary management of pyridoxine non-responsive homocystinuria (HCU), expected primarily for use in infants and young children from 6 months to 5 years of age. | Mar 2023 | Recommended with restriction | none received |
| amino acid formula with vitamins and minerals without methionine Dietary management of pyridoxine non-responsive homocystinuria (HCU). | Jul 2020 | Recommended with restriction | none received |
| amino acid formula with fat, carbohydrate without methionine Dietary management of pyridoxine non-responsive homocystinuria (HCU). | Nov 2019 | Recommended with restriction | none received |
| amino acid formula with vitamins and minerals without methionine Pyridoxine non-responsive homocystinuria. Dietary management in children with this metabolic disorder. | Nov 2015 | Recommended | none received |
What the PBS pays
$49M in government benefit over 2024–25, across 44,379 services.
This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.
| Medicine | Government benefit |
|---|---|
| amino acid formula with vitamins and minerals without methionine and supplemented with arachidonic acid and docosahexaenoic acid | $19.3M |
| amino acid formula with vitamins and minerals without methionine | $17M |
| amino acid formula with fat, carbohydrate without methionine | $12.6M |
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 4 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.