Disease index

heterozygous familial hypercholesterolaemia

Cardiovascular · 2005–2023

6decisions
3medicines
4carried consumer input
37individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
alirocumab Treatment of familial heterozygous hypercholesterolaemia (he-FH) and non-familial hypercholesterolaemia (non-FH), and prevention of cardiovascular events. Mar 2023 Recommended input received
alirocumab Treatment of heterozygous familial hypercholesterolaemia (he-FH) with high cardiovascular risk (patients with atherosclerotic disease and/or very high LDL… Mar 2019 Recommended with restriction 6 individuals Familial Hypercholesterolaemia Family Support Group
evolocumab Treatment of heterozygous familial hypercholesterolaemia (with atherosclerotic disease or very high LDL-c levels) and non-familial hypercholesterolaemia with… Nov 2017 Deferred 18 individuals
alirocumab Heterozygous familial hypercholesterolaemia and clinical atherosclerotic cardiovascular disease in patients with inadequate control on statins and… Nov 2017 Not recommended 13 individuals
ezetimibe; ezetimibe with simvastatin Co-administration with a statin in patients with inadequately controlled cholesterol levels and coronary heart disease, diabetes mellitus, peripheral vascular… Nov 2005 Recommended with restriction no section in document
ezetimibe; ezetimibe with simvastatin Addition of ezetimibe and ezetimibe with simvastatin to the current listing for co-administration with statins in patients with inadequately controlled… Nov 2005 Recommended with restriction no section in document

Who spoke

Familial Hypercholesterolaemia Family Support Group

What the PBS pays

$178M in government benefit over 2024–25, across 7,236,754 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
ezetimibe; ezetimibe with simvastatin $65M
evolocumab $63.2M
ezetimibe $49.8M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 4 of 4 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.