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Velaglucerase AlfaVpriv

Not recommended Rare diseaseNot applicableFirst-line line

Long-term enzyme replacement therapy for paediatric and adult patients with Type 1 Gaucher disease associated with at least one of the following clinical manifestations: anaemia, thrombocytopaenia, hepato-splenomegaly.

3
Submissions
2 resub
2011–12
On the record
ICER range
Cost-min
Cost basis

Decisions on record

2 decisions
  • Meeting Mar 2012 Not recommended Long-term enzyme replacement therapy for paediatric and adult patients with Type 1 Gaucher disease associated with at least one of the following clinical manifestations: anaemia, thrombocytopaenia, hepato-splenomegaly.
  • Meeting Nov 2011 Deferred Type 1 Gaucher disease

Access path

3 submissions · public record
  1. TGA registered · Vpriv

    TGA label narrower than the PBS population

  2. Nov 2011
    Deferred

    vs imiglucerase

  3. Mar 2012
    Deferred
  4. Mar 2012
    Deferred
RecommendedDeferredNot recommended

Cost-effectiveness

Cost-minimisation analysis presented; no ICER calculated. Submission claimed net cost saving based on 1:1 dose ratio equivalence.

The PBAC noted that due to the probable high cost of velaglucerase (even if at a significant discount to imiglucerase), it would not be considered cost effective for listing on the PBS and hence proceeded to consider the possible inclusion of velaglucerase on the LSDP. PBAC · 2012
ICER / price too highEconomic model disputed

Decision context

PopulationPaediatric and adult patients with Type 1 Gaucher disease associated with anaemia, thrombocytopaenia, and/or hepato-splenomegaly.

Submission history

3 entries
DecidedOutcomeComparatorICEREvidence
Mar 2012 Deferred imiglucerase RCT | Single-arm · OS | PFS | DFS | ORR | QoL | Surrogate
Mar 2012 Deferred imiglucerase RCT · Hb
Nov 2011 Deferred imiglucerase RCT | Single-arm · OS | PFS | DFS | ORR | QoL | Surrogate

Similar precedents

By decision profile

Regulatory · TGA

Label narrower than PBS population — PBAC restricts to patients meeting Life Saving Drugs Program criteria; TGA label has no such administrative restriction.