urea cycle disorders
Metabolic · 2015–2021
3decisions
3medicines
0carried consumer input
0individual submissions
No submission for this condition has carried consumer input, including the 3 made since the comments facility came into use.
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| essential amino acids formula with vitamins and minerals Urea cycle disorders (UCDs) and gyrate atrophy of the choroid and retina. | Nov 2021 | Recommended | unclear |
| sodium phenylbutyrate Chronic treatment of patients with urea cycle disorders (UCD) presenting with elevated ammonia levels not controlled with diet alone and other adjunct care… | Jul 2019 | Recommended with restriction | none received |
| citrulline Treatment of urea cycle disorders, specifically for preventing low plasma arginine or citrulline levels. | Nov 2015 | Recommended with restriction | none received |
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 3 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.