Disease index

tuberous sclerosis complex-associated refractory seizures

Neurology · 2017–2017

1decision
1medicine
1carried consumer input
2individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
everolimus Treatment of refractory seizures associated with tuberous sclerosis complex (TSC) in patients aged 2 years and older who have failed to be controlled… Dec 2017 Deferred 2 individuals

What the PBS pays

$23M in government benefit over 2024–25, across 24,537 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
everolimus $23M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 1 of 1 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.