SEGA associated with tuberous sclerosis
Rare disease · 2012–2013
Every decision here pre-dates the consumer comments facility, so no input would be recorded either way.
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| everolimus Initial and continuing treatment of subependymal giant cell astrocytoma (SEGA) associated with tuberous sclerosis (TS) in patients who require therapeutic… | Apr 2013 | Not recommended | unclear |
| everolimus Initial and continuing treatment of subependymal giant cell astrocytoma (SEGA) associated with tuberous sclerosis (TS) in patients who require therapeutic… | Nov 2012 | Not recommended | unclear |
| everolimus Initial and continuing treatment of subependymal giant cell astrocytoma (SEGA) associated with tuberous sclerosis (TS) in patients who require therapeutic… | Nov 2012 | Not recommended | unclear |
What the PBS pays
$23M in government benefit over 2024–25, across 24,537 services.
This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.
| Medicine | Government benefit |
|---|---|
| everolimus | $23M |
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 0 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.