Disease index

fibrodysplasia ossificans progressiva

Rare disease · 2024–2024

1decision
1medicine
1carried consumer input
0individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
palovarotene Chronic treatment of fibrodysplasia ossificans progressiva (FOP) to reduce the formation of heterotopic ossification, and flare-up treatment of FOP in patients… Nov 2024 Recommended input received FOP Australia

Who spoke

FOP Australia

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 1 of 1 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.