Disease index

familial homozygous hypercholesterolaemia

Cardiovascular · 2017–2017

1decision
1medicine
0carried consumer input
0individual submissions

No submission for this condition has carried consumer input, including the one made since the comments facility came into use.

Every decision

MedicineMeetingOutcomeConsumer input
evolocumab Familial homozygous hypercholesterolaemia (treatment of elevated LDL cholesterol in patients with HoFH). Jul 2017 Recommended none received

What the PBS pays

$63M in government benefit over 2024–25, across 176,912 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
evolocumab $63.2M

Appraised elsewhere

NICE, in England and Wales, has appraised 1 technology for this condition, recommending 1 . A different committee, a different population and a different price: this is what has been looked at there, not a verdict on what happened here.

TechnologyAppraisalOutcomeDate
evinacumabEvinacumab for treating homozygous familial hypercholesterolaemia in people 12 years and over TA1002 recommended restricted 2024-09

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 1 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.