Disease index

Wilson disease

Rare disease · 2021–2023

7decisions
2medicines
3carried consumer input
0individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
trientine dihydrochloride Chelation of elevated copper levels in patients with Wilson disease who are intolerant of penicillamine. Jul 2023 Recommended input received
trientine dihydrochloride Treatment of Wilson Disease in patients who are intolerant of penicillamine (D-penicillamine). May 2022 Deferred none received
trientine tetrahydrochloride Treatment of Wilson's Disease in patients intolerant to D-penicillamine therapy. May 2022 Recommended with restriction none received
trientine dihydrochloride Treatment of patients with Wilson Disease who are intolerant of D-penicillamine/penicillamine (DPA). Mar 2022 Not recommended none received
trientine tetrahydrochloride Treatment of Wilson Disease in patients intolerant to D-penicillamine therapy, aged 5 years and older. Mar 2022 Noted none received
trientine tetrahydrochloride Treatment of patients with Wilson Disease who are intolerant to D-penicillamine/penicillamine, in adults, adolescents and children aged 5 years and older… Nov 2021 Not recommended input received
trientine dihydrochloride Treatment of patients with Wilson Disease intolerant to penicillamine/D-penicillamine (DPA) therapy. Nov 2021 Not recommended input received

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 3 of 7 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.