Disease index

Waldenström macroglobulinaemia

Haematology · 2021–2022

2decisions
1medicine
2carried consumer input
29individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
zanubrutinib Treatment of Waldenström macroglobulinaemia in treatment-naïve patients unsuitable for chemo-immunotherapy (defined by CIRS ≥6) and relapsed/refractory… Mar 2022 Recommended with restriction 14 individuals Lymphoma Foundation · Leukaemia Foundation · Rare Cancers Australia
zanubrutinib Treatment of adult patients with Waldenström macroglobulinaemia (WM) who have received at least one prior therapy (relapsed/refractory population) or who are… Jul 2021 Not recommended 15 individuals Lymphoma Foundation · Leukaemia Foundation · Rare Cancers Australia

Who spoke

Lymphoma Foundation · Leukaemia Foundation · Rare Cancers Australia

What the PBS pays

$136M in government benefit over 2024–25, across 17,241 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
zanubrutinib $136.4M

Appraised elsewhere

NICE, in England and Wales, has appraised 1 technology for this condition, recommending 1 . A different committee, a different population and a different price: this is what has been looked at there, not a verdict on what happened here.

TechnologyAppraisalOutcomeDate
zanubrutinibZanubrutinib for treating Waldenstrom's macroglobulinaemia TA833 recommended restricted 2022-10

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 2 of 2 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.