Disease index

systemic light-chain AL amyloidosis

Haematology · 2021–2022

2decisions
1medicine
2carried consumer input
21individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
daratumumab In combination with cyclophosphamide, bortezomib and dexamethasone (CyBorD), for the treatment of newly diagnosed patients with systemic light-chain AL… May 2022 Not recommended input received Myeloma Australia · Leukaemia Foundation · Australian Amyloidosis Network
daratumumab Newly diagnosed patients with systemic light-chain AL amyloidosis, administered in combination with cyclophosphamide, bortezomib and dexamethasone (CyBorD) for… Nov 2021 Not recommended 21 individuals Myeloma Australia · Leukaemia Foundation · Australian Amyloidosis Network

Who spoke

Myeloma Australia · Leukaemia Foundation · Australian Amyloidosis Network

What the PBS pays

$225M in government benefit over 2024–25, across 31,520 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
daratumumab $225M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 2 of 2 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.