Disease index

MDS with del(5q)

Haematology · 2013–2013

1decision
1medicine
0carried consumer input
0individual submissions

Every decision here pre-dates the consumer comments facility, so no input would be recorded either way.

Every decision

MedicineMeetingOutcomeConsumer input
lenalidomide Treatment of transfusion-dependent, low-risk or intermediate-1 risk myelodysplastic syndrome associated with a deletion 5q cytogenetic abnormality. Mar 2013 Recommended with restriction no section in document

What the PBS pays

$79M in government benefit over 2024–25, across 53,764 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
lenalidomide $78.7M

Appraised elsewhere

NICE, in England and Wales, has appraised 1 technology for this condition, recommending 1 . A different committee, a different population and a different price: this is what has been looked at there, not a verdict on what happened here.

TechnologyAppraisalOutcomeDate
lenalidomideLenalidomide for treating myelodysplastic syndromes associated with an isolated deletion 5q cytogenetic abnormality TA322 recommended restricted 2014-09

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 0 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.