Disease index

hereditary transthyretin amyloidosis

Rare disease · 2023–2024

2decisions
2medicines
2carried consumer input
69individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
vutrisiran Treatment of hereditary transthyretin mediated (hATTR) amyloidosis in adult patients with stage 1 or stage 2 polyneuropathy, defined by Familial Amyloid… Nov 2024 Recommended with restriction 12 individuals Leukaemia Foundation
patisiran Treatment of hereditary transthyretin-mediated (hATTR) amyloidosis in adult patients with stage 1 or stage 2 polyneuropathy. Dec 2023 Recommended 57 individuals

Who spoke

Leukaemia Foundation

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 2 of 2 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.