Disease index

generalised convulsive status epilepticus

Neurology · 2022–2023

3decisions
2medicines
3carried consumer input
18individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
midazolam Treatment of generalised convulsive status epilepticus (GCSE) in patients aged over 6 months. Nov 2023 Recommended with restriction 18 individuals Epilepsy Australia · SCN2A Australia · Epilepsy Action Australia · Epilepsy Society of Australia and the National Paediatric Medicines
midazolam maleate Treatment of generalised convulsive status epilepticus (GCSE) in patients with epilepsy aged over 6 months and a high risk of status epilepticus. Jul 2022 Not recommended input received Epilepsy Australia · Epilepsy Action Australia
midazolam Treatment of generalised convulsive status epilepticus (GCSE) in patients with epilepsy aged over 6 months and at high risk of status epilepticus. Nov 2022 Deferred input received Epilepsy Australia · Epilepsy Action Australia

Who spoke

Epilepsy Australia · Epilepsy Action Australia · SCN2A Australia · Epilepsy Society of Australia and the National Paediatric Medicines

What the PBS pays

$2M in government benefit over 2024–25, across 17,162 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
midazolam $1.1M
midazolam maleate $1.1M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 3 of 3 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.