DFSP, HES/CEL, MDS/MPD, ASM
Rare disease · 2007–2008
Every decision here pre-dates the consumer comments facility, so no input would be recorded either way.
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| imatinib mesylate Extension of listing to four rare diseases: dermatofibrosarcoma protuberans (DFSP), hypereosinophilic syndrome/chronic eosinophilic leukaemia (HES/CEL),… | Mar 2008 | Recommended with restriction | no section in document |
| imatinib mesylate Treatment of four rare diseases: dermatofibrosarcoma protuberans (DFSP), hypereosinophilic syndrome (HES) and chronic eosinophilic leukaemia (CEL),… | Jul 2007 | Not recommended | no section in document |
What the PBS pays
$9M in government benefit over 2024–25, across 29,917 services.
This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.
| Medicine | Government benefit |
|---|---|
| imatinib mesylate | $8.6M |
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 0 of 0 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.