Disease index

cutaneous T-cell lymphoma

Haematology · 2011–2025

10decisions
4medicines
5carried consumer input
26individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
mogamulizumab Treatment of adult patients with relapsed or refractory cutaneous T-cell lymphoma (mycosis fungoides or Sezary syndrome) previously treated with at least one… Sep 2025 Recommended with restriction 15 individuals Leukaemia Foundation · Rare Cancers Australia
mogamulizumab Relapsed or refractory cutaneous T cell lymphoma (CTCL) following at least one prior systemic treatment, with clinical evidence specifically in mycosis… Jul 2020 Not recommended 1 individuals Leukaemia Foundation · Rare Cancers Australia
methoxsalen Treatment of patients with erythrodermic stage III-IVa T4M0 cutaneous T-cell lymphoma (CTCL) who are refractory to one or more systemic treatments, delivered… May 2020 Recommended with restriction no section in document
mogamulizumab Treatment of patients with relapsed or refractory cutaneous T cell lymphoma (CTCL) with mycosis fungoides (MF) or Sézary syndrome (SS) following at least one… Nov 2020 Not recommended input received Leukaemia Foundation
brentuximab vedotin Treatment of relapsed or refractory CD30 positive cutaneous T-cell lymphoma (CTCL) in patients who have previously used systemic therapy. Jul 2018 Not recommended 8 individuals
brentuximab vedotin Treatment of refractory or relapsed CD30 positive cutaneous T-cell lymphomas (CTCL), including mycosis fungoides, Sézary syndrome, and primary cutaneous… Nov 2018 Recommended with restriction none received
methoxsalen Treatment of cutaneous T-cell lymphoma (CTCL), specifically erythrodermic stage III-IVa (T4, M0) CTCL in patients refractory to methotrexate or one or more… Jul 2017 Deferred none received
vorinostat Cutaneous T-cell lymphoma (CTCL) in patients with relapsed or chemotherapy-refractory disease who are ineligible for stem cell transplantation. Mar 2017 Recommended with restriction none received
vorinostat Treatment of relapsed or chemotherapy-refractory cutaneous T-cell lymphoma (CTCL) in patients who have received and failed prior systemic therapy, are not… Nov 2016 Deferred 2 individuals Rare Cancers Australia
vorinostat Treatment of advanced (stage IIB-IV) cutaneous T-cell lymphoma (CTCL) where treatment has failed with four systemic therapies. Mar 2011 Not recommended unclear

Who spoke

Leukaemia Foundation · Rare Cancers Australia

What the PBS pays

$23M in government benefit over 2024–25, across 2,911 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
brentuximab vedotin $21.4M
vorinostat $0.9M
methoxsalen $0.3M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 5 of 9 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.