Disease index

autosomal dominant polycystic kidney disease

Rare disease · 2017–2018

3decisions
1medicine
3carried consumer input
74individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
tolvaptan To slow the progression of cyst development and renal insufficiency in adults with autosomal dominant polycystic kidney disease (ADPKD) with chronic kidney… Jul 2018 Recommended with restriction 17 individuals
tolvaptan Autosomal dominant polycystic kidney disease (ADPKD) in patients with chronic kidney disease stages 2–3 at initiation of treatment with evidence of rapidly… Mar 2018 Deferred 49 individuals
tolvaptan Treatment of autosomal dominant polycystic kidney disease (ADPKD) in patients with CKD stages 1-3 and evidence of rapid disease progression. Mar 2017 Not recommended 8 individuals

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 3 of 3 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.