amyotrophic lateral sclerosis
Neurology · 2018–2026
6decisions
3medicines
4carried consumer input
102individual submissions
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| riluzole Treatment of amyotrophic lateral sclerosis (ALS), specifically in patients who experience dysphagia and/or require percutaneous endoscopic gastrostomy (PEG)… | Mar 2026 | Noted | none received |
| edaravone Treatment of amyotrophic lateral sclerosis (ALS) in adults who are independent in activities of daily living, have normal respiratory function, and where… | Dec 2025 | Recommended with restriction | no section in document |
| tofersen Adjunct treatment to best supportive care with or without riluzole in patients with amyotrophic lateral sclerosis (ALS) who have a superoxide dismutase 1… | Nov 2025 | Not recommended | 33 individuals |
| edaravone Adjunct treatment to current standard of care with or without riluzole in patients with amyotrophic lateral sclerosis (ALS) who are independent in activities… | Mar 2024 | Recommended with restriction | 54 individuals |
| edaravone Adjunct treatment to current standard of care with or without riluzole in patients with amyotrophic lateral sclerosis (ALS) who are independent in activities… | Nov 2023 | Not recommended | 15 individuals Motor Neurone Disease Australia · Writing Group · Tanabe Pharma Corporation The Writing Group |
| riluzole Treatment of amyotrophic lateral sclerosis (ALS) in patients diagnosed by a neurologist, with disease duration not exceeding 5 years, at least 60% predicted… | Nov 2018 | Recommended with restriction | input received Motor Neurone Disease Australia · MND Australia |
Who spoke
Motor Neurone Disease Australia · Writing Group · Tanabe Pharma Corporation The Writing Group · MND Australia
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 4 of 6 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.