aHUS
Rare disease · 2017–2017
1decision
1medicine
1carried consumer input
226individual submissions
Every decision
| Medicine | Meeting | Outcome | Consumer input |
|---|---|---|---|
| eculizumab Prevention of atypical haemolytic uraemic syndrome (aHUS) in patients at moderate-high risk of recurrence who have received a renal allograft for end-stage… | Jul 2017 | Recommended with restriction | 226 individuals |
What the PBS pays
$37M in government benefit over 2024–25, across 902 services.
This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.
| Medicine | Government benefit |
|---|---|
| eculizumab | $37.1M |
Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 1 of 1 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.