Disease index

acromegaly

Endocrinology · 2015–2024

6decisions
4medicines
3carried consumer input
6individual submissions

Every decision

MedicineMeetingOutcomeConsumer input
lanreotide Initiation of treatment for acromegaly, functional carcinoid tumour, and non-functional gastroenteropancreatic neuroendocrine tumour (GEP-NET) in the community… Jul 2024 Recommended with restriction 3 individuals
lanreotide Treatment of acromegaly, functional carcinoid tumour, and gastroenteropancreatic neuroendocrine tumours (GEP-NETs) in adult patients with unresectable locally… Nov 2022 Recommended with restriction input received NeuroEndocrine Cancer Australia
pegvisomant Second-line treatment of acromegaly in patients who have failed to achieve biochemical control with maximum indicated doses of octreotide LAR or lanreotide ATG. Mar 2019 Recommended with restriction none received
octreotide Extension of current listing to Section 100 HSD Community Access for acromegaly, functional carcinoid tumours, and vasoactive intestinal peptide secreting… Jul 2018 Recommended with restriction none received
pegvisomant Treatment of active acromegaly in patients who have failed to achieve biochemical control with somatostatin analogues (SSAs). Nov 2016 Recommended with restriction 3 individuals Endocrine Society of Australia · Australian Pituitary Foundation
pasireotide Treatment of acromegaly in patients inadequately controlled with either octreotide LAR 30mg or lanreotide autogel 120mg. Nov 2015 Not recommended none received

Who spoke

Endocrine Society of Australia · Australian Pituitary Foundation · NeuroEndocrine Cancer Australia

What the PBS pays

$93M in government benefit over 2024–25, across 46,737 services.

This is spend on the medicines considered for this condition, not spend on the disease. A medicine used for several conditions is counted in full under each, so figures across conditions add to more than national PBS expenditure.

MedicineGovernment benefit
lanreotide $40.7M
lanreotide acetate $40.7M
octreotide $9.5M
pegvisomant $2.3M

Conditions are classified by a language model from the indication text of each submission, so an individual label here can be wrong. Consumer input is read from the document's own consumer comments section: 3 of 6 decisions since 2014 carried some. Silence means no comment reached the committee through that facility, not that nobody was affected. More on how this was built.